Tuesday, September 10, 2013

One Year Cast Free

I can't believe the one year anniversary of being cast free has passed and I totally forgot about it.  In fact, I had to look back through the blog to see what date it even came off.  Honestly, the cast and Hip Dysplasia in general have been the furthest things from our minds.  Mackenzie is walking and running and jumping and climbing and has totally caught up with other kids her age in terms of her gross motor skills.  I talked to our pediatrician and she told us that there is no way for the hip bones to "regress" back once they are proper position.  Every once in awhile this summer we would stop and say "remember last summer when she was in the cast", but it, and hip dysplasia, are now thankfully a distant memory.
New Runner brand glider bike

Friday, May 17, 2013

Another Great Resource

Check out this website: http://www.hopethehiphippo.com

Lots of information for you whether you are starting your DDH journey or in the middle of it already.

The book is great for older children to help explain to them what is happening and what will be happening to them along their journey if surgery and a spica cast is in their future.   I purchased a copy for Mackenzie to hopefully read with her when she gets older so she can understand why she is in that "crazy cast" in her baby pictures.



Tuesday, April 23, 2013

WE HAVE NORMAL HIPS!!!!

I figured that required shouting!

I can't believe it took me so long to get this on the blog.  More important things I suppose, like running, jumping and spending as much time outside as possible, took priority.

Playing with her favorite new toy - the water table!

We had an appointment with our surgeon on April 23rd (I am going to back-date this post for record keeping purposes).  I was a little bit nervous going in because we had always been told that we need to see continued improvement each time.  If her hips stop improving then we would be looking at an Osteotomy when she was 3 or 4, which is a surgery to cut and change the shape of the bone that makes up the hip joint.

As per usually Mackenzie freaked out when we went into the x-ray room.  They usually only allow one parent in but we asked if we could both go since we knew she would not be happy.  It took both of us holding her down to get the picture.  I hate that part so much.

Then, back to the waiting room until we get called in to see the doctor.

We got the absolute best news we could have gotten.  Her hips are in the normal range!  The doctor said as far as she is concerned her hips are both normal (the left was the one affected).  She should have no future issues except for a slight increased risk of early arthritis but that is a long ways down the road.  We also never have to go back!  Woohoo!

Needless to say we are over the moon.  From my readings and participation on the Facebook and Yahoo groups DDH forums it is not very common that a child would be done treatment after "just" a reduction, usually they go on to need surgery.

Of course now I have millions of questions like: can the hip regress, what do we do if we notice weird things like limping, etc.  But I guess we will cross those bridges when we get there.

 We are excited for a "normal" summer with splash parks, the beach, bouncy castles, cute summer clothes (I may have gone a bit overboard after our endless onesies last summer) and just enjoying life.

Thanks so much to everyone for all of your continued support.  I will try to "check in" on here every so often, but as with lately, I likely wont post very frequently.


Sunday, April 7, 2013

Looking Back

Sorry for the lack of post updates, but we haven't had much new to report.  Mackenzie is walking/running around all over the place these days.  She still has a bit of a widened stance when she walks, but it has definitely narrowed. She still wears her brace for napping and at night.  We go back for another x-ray and check up in about 2 weeks and are hoping we can ditch the brace for good.

I was looking through some old photos yesterday and it is amazing how much she was able to do while in the cast.  Even now, she walks around with it on when we have it on her before or just after sleeping.  She always stands up in her crib now too when she wakes up and wants out.  She's quite a climber, so I am happy for the brace in the sense that it prevents her from climbing out of her crib!

I am trying to get a video of her running, but it seems like whenever the camera comes out she just wants to touch it.  I will definitely update after our next appointment.

Here are some photos from the past 6 months or so:

From October - the Brace doesn't stop me from crawling through my tunnel!

From October - I can just about reach it
From December - playing in a bucket

From December - tobogganing at the babysitters is so much fun!

From December - She loves doing this, so funny!

From January - a Winter walk

Wednesday, January 2, 2013

Merry Christmas

I know I haven't been updating much lately, but there isn't really much to say.  We got a great Christmas present on Christmas Day this is what Mackenzie started doing on a more regular basis!


She walks off and on now.  She seems to prefer to walk if it is on carpet and our main floor of our house is all hardwood flooring.  Sometimes she will take up to 20 steps across the room.  She has learned that she can't really carry things around with her when she is crawling so she has been shuffling around on her knees, pretty cute.  Upstairs she still loves to use the push toy from the earlier video I posted.  She pretty much runs around with that thing and can steer it all over.  She loves to do laps around the Island in our kitchen and have someone chase her.  I love that she is just doing all these "regular kid" kind of things.

Her walking stance is definitely wider than a "normal" kid.  She looks like she's been riding a horse for a long time.  We are hoping that with time her stance narrows, if not, we may go back to Physio and see if they have any ideas.  For now we are just so happy that she is continuing to progress!