Looking Back

Sorry for the lack of post updates, but we haven't had much new to report.  Mackenzie is walking/running around all over the place these days.  She still has a bit of a widened stance when she walks, but it has definitely narrowed. She still wears her brace for napping and at night.  We go back for another x-ray and check up in about 2 weeks and are hoping we can ditch the brace for good.

I was looking through some old photos yesterday and it is amazing how much she was able to do while in the cast.  Even now, she walks around with it on when we have it on her before or just after sleeping.  She always stands up in her crib now too when she wakes up and wants out.  She's quite a climber, so I am happy for the brace in the sense that it prevents her from climbing out of her crib!

I am trying to get a video of her running, but it seems like whenever the camera comes out she just wants to touch it.  I will definitely update after our next appointment.

Here are some photos from the past 6 months or so:

From October - the Brace doesn't stop me from crawling through my tunnel!

From October - I can just about reach it

From December - playing in a bucket

From December - tobogganing at the babysitters is so much fun!

From December - She loves doing this, so funny!

From January - a Winter walk

Merry Christmas

I know I haven't been updating much lately, but there isn't really much to say.  We got a great Christmas present on Christmas Day this is what Mackenzie started doing on a more regular basis!

She walks off and on now.  She seems to prefer to walk if it is on carpet and our main floor of our house is all hardwood flooring.  Sometimes she will take up to 20 steps across the room.  She has learned that she can't really carry things around with her when she is crawling so she has been shuffling around on her knees, pretty cute.  Upstairs she still loves to use the push toy from the earlier video I posted.  She pretty much runs around with that thing and can steer it all over.  She loves to do laps around the Island in our kitchen and have someone chase her.  I love that she is just doing all these "regular kid" kind of things.

Her walking stance is definitely wider than a "normal" kid.  She looks like she's been riding a horse for a long time.  We are hoping that with time her stance narrows, if not, we may go back to Physio and see if they have any ideas.  For now we are just so happy that she is continuing to progress!

Another Check-up Appointment

Even though I always feel very nervous every time we go for a check up, this one was pretty uneventful.  We know the drill by now.  Show up, sit in the waiting room for a bit, go back and get an x-ray (it is an unspoken agreement now that Brice always takes her because he's stronger to hold her legs in place, and I just hate seeing her cry).  Then go back to the waiting room for a bit.  Get called in to the exam room and wait some more.  Resident comes in and asks a bunch of questions that should be in the chart.  Wait some more.  Doctor comes in and tries to get out the door in as little time as possible.

In all seriousness, this appointment went well.  Apparently Mackenzie's hip is still developing, but the angles aren't quite where they'd like them to be.  She will continue to wear the brace when she sleeps - naps and at night - and we go back again in 3-4 months for another x-ray and check-up.  The resident this time was quite informative and explained things really well to us.  However at this point I feel like we almost know as much as them with all the research we have done.

She completely freaks out whenever anyone tries to touch her.  When the resident was trying to examine her she arched her back and was crying so hard and trying to get away.  When the doctor came in he told Brice to just hold her on his lap, but she still cried and tried to get away.  It was kind of cute when she covered her eyes with her hands like that would make him go away.

Because things are continuing to improve we will just continue to wait and see.  The brace wearing is just to help hold her hips in the optimal position for growth.  If, and it's a big if, her hip isn't where they want it to be by the time she is about 4 or 5 then we will be looking at surgery.  The doctor still thinks that is not likely.

As far as the walking, not much of an update.  She will take the odd unassisted step here and there but generally just drops down to her knees to crawl.  She likes to kind of crawl/shuffle sitting up on her knees which is pretty funny to watch.  She is an expert at cruising around with her walking toy.  I'll try to get a video one of these days.  She can steer it and everything and will often times grab it and steer it around to walk to where she is trying to go.

We have Steps!

Mackenzie has started taking her first steps!  She has been cruising around with her walking toy and all along the furniture, but she took her first solo steps on Thursday evening.  She is very wobbly and only takes a couple at a time before dropping back down and crawling the rest of the way.  We are so excited and proud.

We go for another check up with the Orthopedic surgeon on December 18th so we will keep you all posted on how that goes.  She is still wearing her brace at night and for naps.

Look at Me Go!

I'm a little late getting this up on the blog, but I took this video last Friday night.  Just 10 days after she got out of having to wear the brace full time.  She just got up and started doing it all on her own.  First time up she did an entire lap around our kitchen island without stopping.  We didn't even show her how to use the toy to push.  We are so proud! She is also walking all over holding onto furniture and moving between pieces of furniture.

What a Change a Week Can Make

It didn't take Mackenzie long to adjust to life without the brace.

The first day without her brace while she is awake she was already pulling up and standing against everything.  This wasn't a huge surprise as she was doing the same thing before while wearing the brace.

Imagine our surprise when just three full days later she was climbing up full flights of stairs!  She will shuffle along furniture, take a few steps if holding our hands, stands all-the-time and has discovered how to get into all of our cupboards and drawers.

Wearing "real" jeans like a big girl, no need for clothing
to be practical for under a brace :)

Brice took her to her follow up physio appointment on Thursday and they discharged her.  They said she was already meeting all the milestones a kid her age should be and there wasn't really a whole lot they could do for her.  They gave us a few exercises to work on her with.  One is to have her shuffle towards the left along the furniture.  She much prefers moving to the right.  Her left hip was the one effected.  We also were giving some exercises to help transition her from walking supported to moving between furniture to hopefully walking on her own soon.

6 Week Post Spica: Follow up Appointment

I was dreading this appointment as it seems like every time we go to our Orthopedic Surgeon we seem to get "bad" news.

That was not the case this time!

Mackenzie only needs to wear her brace now for naps and night time and she can start working on learning to walk.

Hello World!

I think our surgeon has learned that when it's us he is going to have to explain things very well and wait to answer all of our questions.  He did a much better time this time explaining the rationale behind this next step and giving us an opportunity to ask a few questions.  He still did open the door and begin walking out while he was still talking to us, but we are making progress.

He said that her hip is developing but the Acetabular Index is still a bit shallow.  There is no definitive research about whether or not the brace helps but we both agree that it can't hurt for her to wear it while she's sleeping.

We go back again in 8 weeks for a follow up to see if her hip has continued to develop.